Wednesday, December 29, 2004


Our first mistake was taking a doctor at his word about the timing of surgery. Our second was posting the misinformation online.

As we've learned time and again the past 10 weeks, few things go as they should in the NICU. There's real time, then hospital time, then NICU time, then NICU time around the holidays.

Will's pyloric stenosis surgery wasn't this week. It may be next week. It may not be. There's some new talk about trying to wean him off the ventilator again before surgery. Sorry to get everyone's hopes up about a surgery.

He's weathered well, by the way, a series of snafus and mechanical malfunctions that would have waylaid a weaker kid. Will continually requires less support and has us beginning to hope he may be able to get off the ventilator without a tracheostomy. He's a strong little boy.


Blogger steve_kurth said...

Well. Here's hoping the New Year coming brings better luck. 2004 was a corker.

7:34 PM  
Anonymous Anonymous said...

A Truely Special young angel very brave in soul and spirit... strong because of all the love being sent. And especially the GREAT LOVE of a super MOM & DAD.
Peace and Strength in 2005! XXOO N

2:57 AM  
Anonymous Anonymous said...

Happy 2005 Will! A healthy, happy New Year to Mo, Joel, and Feighans/Kurths/friends as well.


8:25 AM  

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