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Saturday, December 18, 2004

Back again



That didn't take long.

Less than a week after vowing to shut down the entire operation, the blogging urge has again struck. Maybe it's because we have great photos we're eager to share. Maybe we're tired of dodging phone calls wondering if everything's alright.

Maybe things aren't always so bad.

Not much is happening lately. Will is still on the ventilator, and the longer he stays on it, the dicier his future becomes. His challenges with Cornelia de Lange Syndrome, unfortunately, are aggravated by breathing problems. Add in his difficulties swallowing, and doctors are becoming increasingly pessimistic.

It stinks, but Will is a joy. Doctors say he may be severely retarded. We see a super model whose big eyes glow when we read him stories about sea horses and sailing the sea in a sieve. Doctors say he may spend his life in a wheelchair. We see a troublemaker who wrestles with his feeding tube and squeezes our fingers tight. Doctors say he flunked his first hearing test. We fight the urge to bring in foghorns to test their tests.

The bad news has leaked out slowly over 64 days. I'm not sure that's by happenstance or design, but it's allowed us to slowly accept the situation. It's been a long time since I saw a car commercial featuring healthy, laughing children and began crying.

That's not to say tears are infrequent, just that sometimes, things that seem like curses can be blessings.

We're not sure we can promise happy endings anymore, but we know our lives are already so much richer for the experience. Nor can we guarantee thrice-weekly blog updates anymore, but we can see how it goes.

3 Comments:

Blogger Hedricks said...

Well, if he isn't the cutest little bug! And those big, bright, intelligent eyes! Wow -- no wonder you're proud of him!

8:34 PM  
Blogger steve_kurth said...

That's a great shot! Looks like he's got quite a grip. Post some more photos!

12:45 PM  
Anonymous Anonymous said...

Thanks for the reintroduction to the blog. I was sorely missing the updates and the pics. These are great! Regardless of the details, you are right-a total trooper and it is evident when you see his face. Strong and determined. Have a wonderful Christmas!
Michelle

8:07 AM  

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