Sunday, November 21, 2004

Fourth time lucky?

Life is so simple on the ventilator. Will sleeps all day. He wakes up once in a while, listens to stories, drinks milk from a tube every three hours, gets some love from Mom and Dad, then nods back off to dreamland.

It's a cushy life. It's also one that can't last forever.

Doctors and nurses have finally caught on to Will's "I'm Too Cute to Breathe on My Own" routine. Like it or not, he's getting weaned off the ventilator this week. As with much in life, the ventilator is easy and feels good, but bad news in the long run. After a while, infants grow dependent and ventilators can weaken the heart and other organs. Plus, it's impractical. Don't try hailing a cab or navigating a revolving door on a ventilator. It's not fun.

So it's back to the C-PAP (the nose tubes) sometime this week. Since scaring the bejesus out of us last weekend, Will has been a joy this week. His levels are stable. He's up to 3 pounds, 4 ounces and hasn't spit up any fluids or turned blue.

Will has failed to make the transition to the C-PAP from the ventilator three times. We hope the fourth time is lucky. Not to sound dramatic, but it's become a major concern. While going back and forth isn't altogether uncommon for preemies, Will is nearly full-term.

Other tidbits: Will has an EEG scheduled for a few hours Monday to test his brain to see if he's prone to seizures. They're not expecting to fing anything abnormal, but the test is a precaution after he stopped breathing last weekend. One of these days, doctors also are going to send his blood to Washington for expensive chromosomal analysis. They're testing for some scary syndromes, so our fingers are crossed and thoughts positive.

This is a big week for the little guy. He needs a break. His parents need a break. It'd be great to stop worrying about Will for a minute or two and focus on our normal fears this time of year: Finding a scrap to eat after Maureen's father, the Big Beef, weaves through the Thanksgiving buffet.


Blogger steve_kurth said...

That's a great picture of him. You can really see development since he was born.

12:05 AM  
Blogger steve_kurth said...

Also: can't something be done about that Big Beef?

1:38 PM  
Anonymous Anonymous said...

Fourth time's the charm! Happy 1st Thanksgiving, Will.

3:31 PM  
Anonymous Anonymous said...

Go, Will go! You can do it!!
Lots of people are cheering you on. We'll be waving our Will pompoms (blue and white, we think) while we eat turkey and stuffing.
Lots of love from
Your Maine Grandparents

4:52 PM  
Anonymous Anonymous said...

What a sweetie! he looks like you Joel.

Kathy Greco

8:31 PM  
Anonymous Anonymous said...

Best wishes to you all for a Happy Thanksgiving. At my wedding, there was still plenty of food after the Beef had passed through, and in fact, there were others who ate more! Maybe there is some hope for you after all!

My prayers and thoughts are with you and Will.

Maureen will remember me as Deb Wright. Pat and Dave are my godparents.

11:03 PM  
Blogger Julie M. said...

What a hectic life this little man has had so far. My prayers are with Will and the family. I found this blog through blog hopping earlier today. I hope you don't mind my commenting and periodic visiting.

1:06 AM  

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