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Sunday, November 14, 2004

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Maybe it's my limitations as a writer. Maybe the problem is with the material. Either way, it's getting harder to find new ways to write that Will isn't doing well, but he's our son, he makes us proud and we love him.

Will had two of what nurses are now calling "his episodes" yesterday. Both involved spitting up blood, mucus and breast milk. Both, thankfully, happened during our brief breaks from the hospital. He's now back on the ventilator (life support), which is oddly distressing and comforting at the same time.

We're happy he made it a record 10 days on the C-PAP, but we're sad he's in some ways back to square one. We're relieved we don't have to watch him suffer and maybe can see him open his eyes today, but we're upset the future seems so murky.

Mostly, though, we're numb. We're hoping today is event-free because we don't know if we can handle more bad news. We're tired of doctors going out of their way to tell us Will won't ever be normal, when all we're asking is about his care for the next few hours. We don't want to hear another well-intentioned, but unsolicited, lecture about how someone's neighbor's cousin was born premature and now is 6'10", plays for the Pittsburgh Steelers and is such an Adonis he sells his sperm for a living.

We're both pooped and coping in different ways. Mo cries a lot, and lays around watching MTV and reading People magazine and other trash (OK, that may be normal.) Joel rages at Beaumont Hospital and eats everything in sight (also probably normal.) Mostly, though, we're getting by with hugs and love and trying to get through another day.

So, we know it's not very creative or new or interesting, but Will is our son, we love him and we're proud of him. And oh yeah: As of yesterday, he's officially -- and finally -- the 3-pound son who makes us so proud.

2 Comments:

Anonymous Anonymous said...

Hi Mo, Joel and Will (the cutest three pounder ever!)

Just wanted you all to know that you are continually in my thoughts and prayers. Lots of hugs and love to you!!!

Take care and God Bless,

Jen Hen

2:00 PM  
Anonymous Anonymous said...

Hi Mo, Joel and Will (the cutest three pounder ever!)

Just wanted you all to know that you are continually in my thoughts and prayers. Lots of hugs and love to you!!!

Take care and God Bless,

Jen Hen

2:00 PM  

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