Thursday, October 28, 2004

One step back

We knew there'd be days like this.

After all the excitement of the Red Sox victory, Will had a crummy day Thursday. He's back on the ventilator, where he'll remain for a week or two.

He'd done well during his day and a half on the C-PAP (the tubes in his nose), but eventually he had to work too hard and gave up. The doctors think the issue isn't necessarily his lungs, but secretions that build up in his throat and block air flow.

It's the second time in a week Will has gone off the ventilator, onto the C-PAP and back again. It's a not uncommon cycle among preemies, but still a slight cause for concern.

While disappointing, the episode conforms to the two-steps forward, one back pattern we're learning so well. Yesterday afternoon, Will looked great. He had some color (unlike his parents.) He was breathing easy. He'd gained a few ounces (also like his parents), and we caught ourselves daydreaming about a time he could come home.

When we returned that night in our fruitless quest to hear the Sox final out, Will seemed to labor a bit more. By the time we saw him early Thursday afternoon, he was practically translucent (like his Dad) and clearly uncomfortable.

Nobody wants to walk into their son's room and see a gaggle of nurses and doctors adjusting tubes and trying to appear calm while they're scurrying around a portable X-Ray machine, but this is probably the best for Will now.

It's still OK to daydream. The new plan is to try to plump him up with increased feedings and hope the third time's a charm. There's not much else we can do.

Other news on the little guy front: His platelet count, which was such an issue last week, is increasing on its own and doctors think it may have worked itself out. His skeleton X-rays show no abnormalities, other tests have come back fine, and Dr. Batton's hunch is we probably won't know for a few years what -- if anything -- is wrong with him.

For that, we're happy. Except for his breathing, things seem to still be pointing in the right direction, however fuzzily it may appear sometime.

We knew this would be a long process with lots of detours and setbacks, and we knew patience would be tantamount. But it's true what they say. No matter how much you try, no one can really prepare for any of this stuff.

If you can, keep the tiny dude in your hearts today.


Blogger steve_kurth said...

Come on Will!

7:52 PM  

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